This work has been designed as a resource for those directly involved in the delivery of palliative care who wish to pursue research but who have little or no formal training for, or experience of, conducting research. It is also intended as a resource for students on the increasing number of specialist palliative care courses, post-qualification short courses and taught Masters courses for health professionals which have 'health research skills' as important or central elements within their programmes. Although there are many general texts on research methods, there are very few which specifically address research issues in palliative care. This book seeks to fill that gap in the literature. It covers the range of research methods that can be appropriately used for research in palliative care by bringing together a selection of various articles in the field.
David Field is Deputy Director at the Centre for Cancer and Palliative Care Studies, Institute of Cancer Research, Royal Marsden Hospital, London and Professor of Sociology and Palliative Care. His research has looked at the social contexts of care for dying people. David Clark is currently Professor of Medical Sociology at the University of Sheffield. He has wide-ranging interests in the sociology of health, illness and family life. Jessica Corner is Deputy Director and Dean, Centre for Cancer and Palliative Care Studies, Institute of Cancer Research, Royal Marsden Hospital, London and Professor of Cancer Nursing. Her recent research includes the nursing management of breathlessness. Carol Davis is Consultant in Palliative Medicine at Countess Mountbatten House, Moorgreen Hospital, Southampton.
Series Editor's Preface List of Contributors General Introduction Part 1: KEY METHODS FOR RESEARCHING PALLIATIVE CARE Introduction Systematic reviews Survey research in palliative care using bereaved relatives How many subjects are needed in a research sample in palliative care? Placebo-controlled trials in palliative care the argument for Placebo-controlled trials in palliative care the argument against What is qualitative research and what can it contribute to palliative care? Ethical issues in qualitative research in palliative care Part II: CLINICAL RESEARCH IN PALLIATIVE CARE Introduction Fatigue in advanced cancer meaning before measurement? How reliable are relatives' retrospective reports of terminal illness? Patients' and relatives' accounts compared Pitfalls in placebo-controlled trials in palliative care dexamethasone for the palliation of malignant bowel obstruction Multicentre randomized controlled trial of nursing intervention for breathlessness in patients with lung cancer Outcome measures in palliative care for advanced cancer patients a review Part III: NEEDS ASSESSMENT, AUDIT AND EVALUATION Introduction Key Issues in palliative care needs assessment Palliative care needs assessment incorporating the views of service users The assessment of need for bereavement follow-up in palliative and hospice care Clinical audit and organizational audit in palliative care Formative evaluation and its relevance to palliative care Index.
Open University Press
Open University Press
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David Clark, Jessica Corner, Carol Davis
RESEARCHING PALLIATIVE CAR