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Palliative Care in Amyotrophic Lateral Sclerosis

Amytrophic Lateral Sclerosis (or motor neurone disease) is a rare disease that can cause profound suffering for both the patient and their family. This book reflects the wide scope of pallative care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease.
Palliative Care in Amyotrophic Lateral Sclerosis
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Amytrophic Lateral Sclerosis (or motor neurone disease) is a rare disease but one that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families, culminating in discussion of bereavement. The experience of patients and families is considered and case studies are provided to show the practical application of the theoretical knowledge.
Different models of care are explored, and this new edition utilises the increase in both the evidence-base and available literature on the subject. Additional chapters on nursing, spiritual care, decision making, and ethical issues surrounding end of life care ensure that this new edition remains the essential guide to palliative care in ALS.
David Oliver was awarded the Humanitarian Award of the International Alliance of ALS/MND Associations in 2003, in recognition of his work in this area. He is also Visiting Professor at the University of Zagreb Medical Faculty in Croatia. Gian Domenico Borasio co-authored the first ever article on Palliative Care in Neurology in 1994, and organised the first symposium on the subject in 1996. With his team, he runs the Interdisciplinary Center for Palliative
Medicine at the Munich University Hospital, which won the Annual University Award of the International Association for Hospice and Palliative Care in 2004.

Professor Borasio was co-editor of Palliative Care in Neurology, OUP 2004. Dr Walsh is a founding member of both the European Association of Hospice and Palliative Care, and the American Academy of Hospice and Palliative Medicine. He is Associate Editor of the Journal of Supportive Care in Cancer and serves on the Editorial Boards for The American Journal of Hospice and Palliative Medicine, Palliative Medicine, Journal of Supportive Oncology, and Supportive Cancer Therapy. He is also on the
Board of Directors for MASCC, the Multinational Association for Supportive Care in Cancer.
1. Amyotrophic lateral sclerosis/motor neurone disease; 2. Palliative care; 3a Communication: breaking bad news; 3b Communication: decision making; 3c Communication: advance directives; 4a Control of symptoms - dyspnoea and respiratory; 4b Control of symptoms - dysphagia; 4c Control of symptoms - cognitive dysfunction; 4d Control of symptoms - other symptoms (including depression); 5. Psychosocial care; 6. Spiritual care; 7a Multidisciplinary care - physiotherapy; 7b Multidisciplinary care - occupational therapy; 7c Multidisciplinary care - speech and language therapy; 7d Multidisciplinary care - the psychologist; 7e Multidisciplinary care - nursing care; 8. International aspects of care; 9a End of life care - ethical issues; 9b End of life care; 10. Bereavement; 11a Personal experiences: one day at a time - the experience of an ALS caregiver; 11b Personal experiences: amyotrophic lateral sclerosis and how it affects my life; Appendix 1 - Suppliers; Appendix 2 - Websites
This book makes and essential reading for Palliative care physicians, Palliative care nurses and GPs involved in care ALS. Although this book is written on the subject of palliative care in ALS sclerosis however, good practices can extrapolated to palliative care of other neurological conditions. BMA Medical Book Competition 2007 This book is well written and thorough. I am not aware of another book that provides such a comprehensive treatment of the palliative aspects of ALS in a way that the clinician can use it often. Doody's Notes
Amytrophic Lateral Sclerosis (or motor neurone disease) is a rare disease but one that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the
wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality
of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families, culminating in discussion of bereavement. The experience of patients and families is considered and case studies are provided to show the practical application of the theoretical knowledge. Different models of care are explored, and this new edition utilises the increase
in both the evidence-base and available literature on the subject. Additional chapters on nursing, spiritual care, decision making, and ethical issues surrounding end of life care ensure that this new edition remains the essential guide to palliative care in ALS.
`Review from previous edition This book is reasonably priced and will prove valuable to medical and paramedical staff caring for MND patients. It provides comprehensive, evidence based information clearly written and accessible to a multidisciplinary readership. The advice is practical, compassionate and based on extensive clinical experience.'
Brain
`Throughout the book, a positive tone emerges reflecting the view that, despite the devastating effects of MND, much can be done to alleviate symptoms, improve the quality of life of the afflicted person and to assist patients and their families to cope throughout the various phases of the disease.'
Palliative Medicine
`Palliative Care in Amyotrophic Lateral Sclerosis comprehensively and successfully fills what was previously a noticeable gap in palliative care literature and should be regarded as the essential reference text for any unit or individual professional involved in any way with the care of patients with ALS.'
Progress in Palliative Care
`This volume crystallises current perspectives on the palliative management of ALS with consummate skill. Although not a long volume it covers the many important and complex in a very balanced manner. All health professionals involved in the care of ALS sufferers will benefit from reading it... It should be available to all departments providing care for ALS patients and carers and is an outstanding contribution to the ALS literature.'
Journal of Neurology
Essential guide for health professionals involved in the care of patients with ALS
Evidence-based and referenced throughout
International contributors provide a wide perspective on this niche area of palliative care
Includes personal experiences of this harrowing disease
Addresses the needs of both the patient and the carer
Publisher
Oxford University Press
Year
2006
Edition
2nd
ISBN-10
0199212937
ISBN-13
9780199212934
Format
Hardcover
Publication Date
2006-11-09
Imprint
Oxford University Press
Subtitle
From Diagnosis to Bereavement
Place of Publication
Oxford
Country of Publication
United Kingdom
Replaces
9780192631664
Edited by
Declan Walsh, David Oliver, Gian Domenico Borasio
DEWEY
616.83
Illustrations
22 line illustrations and halftones, tables
Author
David Oliver
Media
Book
Short Title
PALLIATIVE CARE IN AMYOTROPHIC
Series
Oxford Linguistics
Language
English
Audience
Professional and Scholarly
Pages
368
Edition Description
Revised
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